12
Dec
2023
European Health Data Space (debate)
You know that if we want data to be useful for research innovation, it needs to be representative, and you know what you propose is to have a consent-based system or an opt-in system whereby every patient whose data is part of a certain data set would need to give consent or an opt-in for this data to be used. So my question is: how do you plan to ensure representativeness, that this data is actua…