24
Nov
2021
Watch
A European Action Plan Against Rare Diseases (debate)
Madam President, Commissioner, I am speaking to you tonight with this mother in mind, one of the many mothers I met yesterday morning in the European Parliament. She works in Parliament’s Research Service and her son has a very rare metabolic disease. So in his case, the diagnosis was made and it is a victory. Treatment exists and is very rare. As you pointed out, Commissioner, 95% of rare disease…